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Self-Management and Participation

Tackling complex issues with collaborative research

The 'Self-Management and Participation' research programme directly addresses the societal challenge of giving people who have with chronic diseases the capacity to properly manage their condition properly, thereby resulting in optimal improving healthcare outcomes, quality of life, and societal participation.

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In this research programme
Camp Cool

Camp Cool

Camp COOL is organised by the COOL Foundation. It is an activities camp for chronic kidney patients between the ages of 16 and 25.

CANS

CANS

At the end of September 2012, administrative approval was given by all the organisations involved in the development of the multidisciplinary guideline for aspecific complaints of arm, neck and/or shoulder (CANS).

Core Functions of Regional Palliative Care Networks

Core Functions of Regional Palliative Care Networks

Investigation of the extent to which the regional palliative care networks (RPCN) meet the minimum requirements regarding the RPCN core functions.

Diversity in Career Trajectories

Diversity in Career Trajectories

This study is oriented towards a specific target group: people who acquire a disability during their working life.

Ethical dilemmas

Ethical dilemmas

Self-management is a hot item in health care today. It would enhance patients’ quality of life and curtail the rising health care costs. In practice, nurses are faced with conflicting values.

Evaluation of transition clinics

Evaluation of transition clinics

A transition clinic (also named adolescent or young adult clinic) is an outpatient clinic in the hospital focused on the transition from paediatric to adult health care of young people with chronic conditions.

Giving young people a voice: the instrument My Path

Giving young people a voice: the instrument My Path

The aim is to give youth a voice so that they can take charge of their own life and future. The instrument has originally been developed for and with 16+ youngsters living in a residential institution and who have multiple complex problems.

SeCZ TaLk

SeCZ TaLk

A board game for adolescents with a chronic condition, developed in order to make topics such as relationships, intimacy and sexuality negotiable and to convey information on these topics.

SPIL

SPIL

A collaborative research program that aims to improve (and support) self-management and social participation of adolescents with chronic conditions in their transition to adulthood.

This is our life

This is our life

The birth of a child with mcd has a huge impact on parents, brothers and sisters, on family life. Now, this research group works on a movie and educational program about family life with a child who has mcd.

TraJect: At Work?!

TraJect: At Work?!

A multidisciplinary vocational rehabilitation intervention aimed at empowering young adults with physical disabilities and supporting them in finding a suitable job.

Transition in care for youth with intellectual disabilities

Transition in care for youth with intellectual disabilities

Aim was to realise a Transitional Care protocol. This protocol especially deals with the bottlenecks in the transition from paediatric care to adult care as experienced by care providers, parents and youths.

Walk-In Homes

Walk-In Homes

The aim of this research is to investigate how cancer patients are informed about and referred to the walk-in homes, their experiences there and how they evaluate these experiences.

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